Brian and Meghan Wilson don’t want to leave their home state of New Jersey. They would prefer to remain near their families and friends — and they want their two-year-old daughter to be able to keep seeing her nationally renowned neurologist, who’s an expert at treating her rare form of epilepsy.
But, since progress on New Jersey’s medical marijuana policy has stalled, the family is being forced to relocate anyway. They’re going to Colorado to seek out treatment for their daughter, Vivian, who needs a liquefied marijuana strain in order to prevent her potentially fatal seizures.
The Wilsons have been fighting for policy reform in New Jersey for the past year. Although the state began issuing medical marijuana cards back in 2012, there were stringent limits for minors that prevented kids like Vivian from being able to take edible marijuana. “Please don’t let my daughter die,” Vivian’s dad implored Gov. Chris Christie (R) in August, pressuring the governor to approve legislation that would have expanded access to several strains of marijuana.
Christie ended up approving a weakened form of that legislation. But it wasn’t enough. Although kids with conditions like Vivian’s are now legally allowed to access edible marijuana, the dispensaries in the state aren’t producing those type of products, and the state’s health department has no plans to begin testing them. Christie says he’s “done expanding the medical marijuana law,” and recently rejected a bill that would have allowed families like the Wilsons to buy edible strains in other states and transport them home to New Jersey.
The Wilsons have tried to navigate New Jersey’s restrictive medical marijuana law. But they say the state laws don’t go far enough to help two-year-old Vivian — who must wear an eye patch, avoid direct sunlight, and stick to a special low-carb diet in an attempt to prevent potentially deadly seizures — and they can’t afford to wait it out. Treatment for Vivian’s condition still remains out of reach.
“I’m just ready to start the next chapter. If we get medicine that helps Vivi, that’s great. Who the hell cares we had to move?” Meghan Wilson told the Star-Ledger as her family prepared to board their flight to Colorado.
The Wilsons will join a growing number of “medical refugees” who have moved to Colorado to seek a so-called “miracle strain” of marijuana that can help treat pediatric epilepsy. About 180 other children like Vivian are currently receiving treatment from the same dispensary in Colorado Springs. More than 100 families have moved from 43 states to pursue this option for their severely ill children.
The so-called “Charlotte’s Web” strain is named after Charlotte Figi, the first child who tried the treatment after her parents exhausted all of their other medical options. After she started taking this strain of medical marijuana, Charlotte’s seizures immediately stopped, and the seven-year-old is now feeding herself, walking, and riding her bike. Her case helped convince CNN Chief Medical Correspondent Sanjay Gupta to reverse his position on the medical benefits of marijuana, admitting that he was “too dismissive of the loud chorus of legitimate patients whose symptoms improved on cannabis.”