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Stories tagged with “autism

Health

How Smartphones Are Revolutionizing Home Care For Alzheimer’s And Autism Patients

As technological innovation empowers consumers to take greater control over their lives, the health industry has taken particular advantage of emerging internet and mobile devices. The burgeoning mHealth industry — which involves using mobile devices to improve health care delivery and outcomes — has exploded in the last five years, allowing everyday Americans to access better information about medical conditions and provide better ongoing care to themselves and their families. Now, creative new apps are helping home care workers better assist Americans with Alzheimer’s and autism.

mHealth apps are particularly useful for monitoring patients with ongoing and chronic medical needs, since such programs provide a multitude of services to keep track of medication schedules, exchange notes with doctors and professional home care workers, and even track the patients themselves. That comes in handy for caretakers such as Laura Jones, who had to keep working full time to provide her 50-year-old Alzheimer’s-afflicted husband with health insurance:

Using Comfort Zone, which is offered by the Alzheimer’s Association starting at $43 a month, [Jones] was able to go online and track exactly where [her husband] was and where he had been.

Her husband carried a GPS device, which sent a signal every five minutes. If Jones checked online every hour, she would see 12 points on a map revealing her husband’s travels. She would also get an alert if he left a designated area.

Eventually, the tracking revealed that Jones’ husband was getting lost.

“He would make a big funny loop off the usual route and we knew it was time to start locking down on him,” she said.

Conveniences like that may be difficuly to pin a numerical value on — but they make an enormous pragmatic difference in the lives of real Americans. By being able to track her husband, Jones doesn’t have to entrust such care to a salaried full-time worker, and has the freedom to be more intimately involved in her husband’s care.

When it comes to conditions that tend to onset earlier in life, such as autism, mHealth apps can offer an interactive medium that makes it easier to engage with autistic children:

Lisa Goring, vice president of Autism Speaks, said tablets have been a boon to families with autistic children. The organization has given iPads to 850 low-income families. And the Autism Speaks website lists hundreds of programs — from Angry Birds to Autism Language Learning — that families have found useful.

Samantha Boyd of McConnellstown, Pa., said her 8-year-old autistic son gets very excited when the iPad is brought out.

“There’s no way he’d be able to use a keyboard and mouse,” she said. “But with the iPad, we use the read-aloud books, the songs, the flash card apps.”

Other popular applications include the inexpensive pillbox app “Balance,” which lets users schedule alerts for their complex treatment regimens, and CareGiver apps that let families find and monitor professional caregivers who serve their loved ones. Not only does this kind of technology empower consumers — it also cuts down on health care costs. Pillbox apps are particularly promising on this front, since noncompliance with treatment regimens is a major contributor to bloated U.S. health care spending. And overall, organizations like Allie Health World estimate that the use of mHealth could double access to health care services while lowering administrative costs through better data collections — even potentially reducing seniors’ health care costs by 25 percent.

Alyssa

From ‘Freaks and Geeks’ To ‘The Big Bang Theory,’ Pop Culture’s Conflation Of Geekiness and Autism

In mid-January, the critic Noel Murray wrote a perceptive and important essay for The AV Club about how much depictions of both nerds and people with autism have improved in popular culture in recent years. He explained that:

Five years ago, when my son turned 6, I wrote an essay for this site called “Rain Man Revisited,” in which I lamented that movies and TV episodes about autism tend to treat the autistic as aliens in our midst, defined only by their family members, who spend their lives waiting for their autists to say “I love you.” The situation has vastly improved since then, even beyond Sheldon Cooper. The HBO movie Temple Grandin did justice to an icon in the autism community, showing Grandin as a complicated person with accomplishments and pleasures as well as limitations. Community, The Middle, and Parenthood have created distinctive ASD characters in the pop-culture-consumed Abed Nadir, the obsessive-compulsive bookworm Brick Heck, and the inadvertently insensitive Max Braverman. And Ryan Cartwright’s performance as the autistic superhero Gary Bell on Alphas has been one of the truest I’ve yet seen, accurate in the autist’s at-times-frustrating inability to control his own quirks while also allowing Gary to be amused and amusing on his own terms.

In the weeks since Murray published his essay, I rewatched Freaks and Geeks, Paul Feig’s genius single-season show about the students at a suburban high school near Detroit, and Undeclared, collaborator Judd Apatow’s show about college freshmen living on the same hall. And while I was struck by any number of things in both shows, part of what stood out for me was the depictions of nerds. There’s no question that the geeks on both shows face any number of social challenges, from bullying, to building friendships with women they find attractive, to communicating sincerity when their default mode is sarcasm, to determining the status of a relationship after you’ve slept with someone once. But they’re decidedly not autistic: in fact, many of their problems stem from a mismatch between the geeks’ strong emotions, sincerity, and desires to connect and the environments in which they operate, which tend to overvalue coolness, detachment, and irony. It was a set of depictions that made me wonder if the depictions of nerds and autists have improved because we’re over-conflating geekiness and the presence of characters somewhere on the autism spectrum, rather than reflecting the range of both nerds and people with autism.

One of the best creations of Freaks and Geeks is Harris Trinsky, a long-haired nerd played by Stephen Lea Sheppard who, incidentally, has his only other acting credit Dudley Heinsbergen, the character in The Royal Tenenbaums who is being studied by Bill Murray’s Raleigh, who describes Dudley as suffering “from a rare disorder combining symptoms of amnesia, dyslexia, and color-blindness, with a highly acute sense of hearing.” Harris unmistakably geeky—the Dungeon Master of his social circle’s Dungeons and Dragons games, a good student, slack-physiqued in a way that suggests he isn’t trying to assimilate by bulking up or going out for sports—yet he’s also something of a sage. He advises Sam Weir, Neal Schweiber, and Bill Haverchuck to fight their bully, Alan White. He has a girlfriend, Judith, who he gets “scented oils and plenty of time with her man,” though they don’t appear to be having sex. Chief Freak Daniel Desario comes to Harris for an assessment on whether or not he’s a loser, and Harris calmly tells him “You’re not a loser ’cause you have sex, but if you weren’t having sex, we could definitely debate the issue.” When Coach Fredericks institutes a requirement that students shower after gym class, Harris is the one of the geeks who reacts with utter calm—he’s not ashamed or anxious of his body. Harris is very, very different from his contemporaries, but he’s not made uncomfortable the ways in which he’s socially out of step. Instead, Harris is comfortably and confidently marching to the beat of his own drummer.

The question for the rest of the geeks—and even for some of the freaks—is whether they’ll end up deciding that the tune Harris identified earlier than the rest of them is a fit, or whether they’ll end up socially assimilating in other ways. Sam, as his friendship and experience dating Cindy Sanders suggests, may have more capacity than Harris does to socially assimilate. The most conventionally handsome of his friends, once Sam hits his growth spurt and develops some fashion sense that doesn’t involve powder-blue jumpsuits, he may face even more intense questions about which social groups he wants to be a part of, rather than finding happiness in the group that will have him. Sensitive Bill may not grow into those options, but his bluntness has its appeal for popular students who are also going through the process of finding out that the social group where they initially landed may not be the one where they’d prefer to end up, as was clear in the episode where he and the other geeks attend a makeout party, and his seven minutes in heaven with a cheerleader turns into something more sincere and extended.
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Health

Mounting Evidence Shows Possible Link Between Air Pollution And Autism

A new study from University of Southern California researchers finds that children exposed to more air pollution had higher rates of autism. Though there is no conclusive answer about whether pollution can cause autism, the lead author says “it may be a risk factor for autism. Autism is a complex disorder and it’s likely there are many factors contributing.”

Studying 500 children California cities, the researchers found those likely exposed to the most pollution — estimated based on traffic, vehicle emissions, wind patterns, and regional data — are two to three times more likely to be diagnosed with the disorder. Some children may be more susceptible because of genetics.

TIME describes the growing body of research that links autism to pollution:

Even so, the latest study findings suggest that air pollution may be one of the best characterized environmental risk factors for autism. In an earlier study published in 2010, Volk and colleagues showed that kids with autism were much more likely than kids without the disorder to have been born to mothers living within 1,000 feet of a freeway. Other researchers have shown that kids with autism are also unusually likely to have exposure to high levels of diesel exhaust particles and metals (mercury, cadmium, and nickel) and to other air-pollutant chemicals, such as those used to make rubber, plastics, and dyes.

These associations continued to remain strong even after researchers adjusted for other characteristics, like poverty, that may also be connected to pollution. Unlike asthma, for example, autism rates are not consistently higher among lower income populations. In Volk’s study, the links between air pollution and autism risk were virtually unchanged after accounting for parents’ race and ethnicity, educational attainment, and smoking status, as well as for the area’s population density.

Some questions do remain, such as why autism diagnoses have increased since 2006 to 1 in 88 children without any major changes in pollution. Although scientists need to further examine that link, outdoor pollutants are already a known trigger in asthma, which has also become more common in recent years.

Health

Trump Spreads Dangerous Myth That Vaccines Cause Autism

Vaccines don’t cause autism — the science on the question is clear. But Donald Trump evidently thinks he knows better than the entire scientific community and took to Twitter to suggest otherwise:

The number of people who share of Trump’s view — which, again, is entirely unsupported by the relevant science — could be already be having pernicious consequences. For example, the U.S. is facing the worst whooping cough epidemic in 50 years, a disease easily prevented by vaccine. While budget cuts to state-level health organizations have exacerbated the epidemic’s spread, there are concerns that fears about the mythical autism-vaccine link are helping to increase the number of whooping cough cases as some children are not vaccinated.

This isn’t the first time Trump has expounded nonsense on vaccines and autism. However, the timing is especially sensitive given that Trump has been given a special “suprise” role in the upcoming Republican convention in Tampa by its organizers.

Alyssa

Tim Kring Is To Hollywood as Lamenting Partisanship Is to Washington

So, Tim Kring started out the panel for Touch, his new autistic-people-are-magic show starring Keifer Sutherland as a 9/11 widower by informing us that Sutherland’s character’s son, a white American child, is “the most disenfranchised person on the planet. He’s small, he’s unable to communicate, to make his point known.” Given that, it wasn’t exactly shocking that Kring ended up presenting himself essentially as the Evan Bayh of Hollywood. Rather than lamenting partisanship in Washington, Kring’s come up with something he calls “social benefit storytelling,” which turns out to be a plan to change the world with warm, fuzzy television that avoids actually discussing what it means to have an autistic child.

To be fair, Kring told me that “he show…is really just about putting this message out into the world and trying to create stories that uplift people through this theme of interconnectivity. In terms of actually calling attention to various things, it is a show that aspires to do that, and I would love to have some of the stories we tackle call attention to various issues around the world and use the power of storytelling to create some positive change out there.” And he did cite the idea “that people tens of thousands of mile away would fly planes into this building is a result of our globally connected world.” So I really do hope that if this is going to be a butterfly effect show, it will be one that actually suggests that there are consequences for American policy at home and abroad.

But I’m really turned off by the idea that positive energy is the basis for our failures to connect. There’s nothing wrong with wanted to set a civil tone or approach other people with a spirit of openness, and after 24, I do think it’s good that Keifer Sutherland wants to be involved in a project that preaches those values. But there are structural factors that influence why people are unable to connect with each other and to be civil to each other. You see this in movies like A Better Life—poverty means you can’t be generous, that you don’t have time to build the family life that you want. It’s the reason the broadband gap matters: if you can’t get online, you don’t have access to what Kring called “the emerging story of our time is that we’re more connected to each other than we ever thought or knew, and I think it’s being born out by the whole social networking world that we’re living in.” There’s something odd about wanting to tell stories about the things that keep us from talking each other but starting that show out by inventing a magical alternative to autism.

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